Title

"Take Out This Thing": A Teen's Decision About Removal of a Gastrostomy Tube.

Document Type

Article

Publication Date

3-2020

Identifier

DOI: 10.1542/peds.2019-1621

Abstract

Medical decision-making in children is not a static process. In pediatrics, parents and health professionals actively participate in clinical decision-making. They always consider what is in the child's best interest and sometimes weigh that against other considerations. As children get older, the level of participation in this process may change according to their own cognitive development and maturity level. In this article, we present a case of an adolescent with a life-limiting condition at the end of life. He wants to participate in his health management and speak for himself. He does not always prefer interventions that his parents think are best. Health care practitioners must include mature minors in the decision-making process and be willing to listen to their voices.

Journal Title

Pediatrics

Volume

145

Issue

3

MeSH Keywords

Adolescent; Decision Making; Device Removal; Gastrostomy; Humans; Male; Patient Rights; Personal Autonomy; Treatment Refusal

Keywords

Adolescent; Decision Making; Device Removal; Gastrostomy; Humans; Male; Patient Rights; Personal Autonomy; Treatment Refusal

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