Title

Communicating with parents of children with trisomy 13 or 18 who seek cardiac interventions.

Document Type

Article

Publication Date

3-2021

Identifier

DOI: 10.1017/S1047951120004023

Abstract

This case report shares the story of a family who sought care elsewhere after their daughter was denied cardiac surgery in their home state because she had trisomy 18. This case report recommends case-by-case assessment of cardiac surgical interventions for children with trisomy 13 or 18 as informed by review of goals, assessment of comorbidities, and literature-informed practice. Coordinated care planning and interdisciplinary communication are relevant in cardiac surgical considerations for children with these underlying genetic conditions.

Journal Title

Cardiology in the young

Volume

31

Issue

3

First Page

471

Last Page

475

Keywords

Trisomy 13; cardiology; communication; paediatric palliative; trisomy 18

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