Communicating with parents of children with trisomy 13 or 18 who seek cardiac interventions.
This case report shares the story of a family who sought care elsewhere after their daughter was denied cardiac surgery in their home state because she had trisomy 18. This case report recommends case-by-case assessment of cardiac surgical interventions for children with trisomy 13 or 18 as informed by review of goals, assessment of comorbidities, and literature-informed practice. Coordinated care planning and interdisciplinary communication are relevant in cardiac surgical considerations for children with these underlying genetic conditions.
Cardiology in the young
Trisomy 13; cardiology; communication; paediatric palliative; trisomy 18
Weaver, M. S., Lantos, J., Hauschild, K., Hammel, J., Birge, N., Janvier, A. Communicating with parents of children with trisomy 13 or 18 who seek cardiac interventions. Cardiology in the young 31, 471-475 (2021).