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Rare Disease Advisory Committee. Established 2019 to advise Drug Utilization Review Board. Multidisciplinary committee comprised of allied healthcare professionals (physicians, PharmD, RN, PhDs) and MO HealthNet staff. Quarterly meetings. Appointment based on experience researching, diagnosing, and treating rare diseases. Provide expert recommendations or determinations regarding access to drugs and/or biological products for rare disease treatment.
When and Where Presented
Presented at the Missouri Department of Health and Senior Services Cystic Fibrosis Task Force; April 23, 2020; Jefferson City, MO.
Oermann, Christopher M., "Missouri Department of Social Services Rare Disease Advisory Committee Update On Ivacaftor/Tezacafto/Elexacaftor" (2020). Presentations. 62.