Title

Engaging parent-child dyad and healthcare provider stakeholders in a patient-centered comparative effectiveness study.

Document Type

Article

Publication Date

7-2019

Identifier

DOI: 10.2217/cer-2018-0126

Abstract

Aim: Describe engagement activities in a comparative effectiveness study evaluating two interventions for promoting psychosocial health among youth ages 10-17 who have recently experienced a nonintentional injury. Methods: Institutional, community and patient stakeholders from four children's hospitals were engaged through consultation meetings, individual interviews and a collaborative meeting. Results: 67 engagement activities were conducted across four hospitals. Feedback to improve recruitment, retention and continuous engagement in the study was obtained. Finally, disseminating study interventions to school and healthcare settings, and adding alternative delivery formats were identified as priority next steps. Conclusion: Results highlight diverse methods of engaging patient and professional stakeholders, critical recommendations for improving study engagement and retention, and future directions for this patient-engaged comparative effectiveness research.

Journal Title

J Comp Eff Res

Volume

8

Issue

9

First Page

721

Last Page

732

MeSH Keywords

Adolescent; Child; Comparative Effectiveness Research; Health Personnel; Health Promotion; Humans; Mental Health; Parents; Patient Participation; Patient-Centered Care; Research Design

Keywords

comparative effectiveness research; health services research; mental health; pediatrics; stakeholder engagement; trial design

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