Document Type
Article
Publication Date
8-18-2020
Identifier
DOI: 10.1161/JAHA.119.014548; PMCID: PMC7660817
Abstract
This scientific statement summarizes the current state of knowledge related to interstage home monitoring for infants with shunt-dependent single ventricle heart disease. Historically, the interstage period has been defined as the time of discharge from the initial palliative procedure to the time of second stage palliation. High mortality rates during the interstage period led to the implementation of in-home surveillance strategies to detect physiologic changes that may precede hemodynamic decompensation in interstage infants with single ventricle heart disease. Adoption of interstage home monitoring practices has been associated with significantly improved morbidity and mortality. This statement will review in-hospital readiness for discharge, caregiver support and education, healthcare teams and resources, surveillance strategies and practices, national quality improvement efforts, interstage outcomes, and future areas for research. The statement is directed toward pediatric cardiologists, primary care providers, subspecialists, advanced practice providers, nurses, and those caring for infants undergoing staged surgical palliation for single ventricle heart disease.
Journal Title
J Am Heart Assoc
Volume
9
Issue
16
First Page
014548
Last Page
014548
MeSH Keywords
American Heart Association; Caregivers; Checklist; Communication; Enteral Nutrition; Home Nursing; Humans; Hypoplastic Left Heart Syndrome; Infant; Monitoring, Physiologic; Norwood Procedures; Oximetry; Oxygen; Palliative Care; Patient Care Team; Patient Discharge; Quality Improvement; Reoperation; Risk Factors; Transitional Care; United States; Weight Gain
Keywords
AHA Scientific Statements; cardiovascular abnormalities; caregivers; infant; univentricular heart
Recommended Citation
Rudd NA, Ghanayem NS, Hill GD, et al. Interstage Home Monitoring for Infants With Single Ventricle Heart Disease: Education and Management: A Scientific Statement From the American Heart Association. J Am Heart Assoc. 2020;9(16):e014548. doi:10.1161/JAHA.119.014548
Comments
This is an open access article under the terms of the Creative Commons Attribution‐NonCommercial‐NoDerivs License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non‐commercial and no modifications or adaptations are made.
Publisher's Link: https://www.ahajournals.org/doi/10.1161/JAHA.119.014548