Title

Establishing core domain sets for Chronic Nonbacterial Osteomyelitis (CNO) and Synovitis, Acne, Pustulosis, Hyperostosis, Osteitis (SAPHO): A report from the OMERACT 2020 special interest group.

Document Type

Article

Publication Date

8-2021

Identifier

DOI: 10.1016/j.semarthrit.2021.05.015

Abstract

OBJECTIVE: A working group was established to develop a core domain set (CDS) for Chronic Nonbacterial Osteomyelitis (CNO) and Synovitis, Acne, Pustulosis, Hyperostosis, Osteitis (SAPHO) following the OMERACT filter 2.1.

METHODS: A scoping review to identify disease-related manifestations was performed, followed by a special interest group (SIG) session at OMERACT2020 to begin the CNO/SAPHO CDS framework.

RESULTS: Candidate items were identified from the scoping review and most fell under Life Impact and Pathophysiology Manifestation core areas. A SIG agreed on the need to develop a CDS for CNO and SAPHO (100%) and for children and adults (91%).

CONCLUSION: Based on candidate items identified, qualitative research and Delphi surveys will be performed as next steps.

Journal Title

Seminars in arthritis and rheumatism

Volume

51

Issue

4

First Page

957

Last Page

961

Keywords

Acne; Chronic nonbacterial osteomyelitis; Hyperostosis; OMERACT; Osteitis; Outcome research; Pustulosis; Synovitis

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