What is the best way to care for a child with severe neurologic impairment who seems to be dying and is in intractable pain? Can we give sedation as we remove life support? Is it ethically permissible to hasten death? In the United States, 5 states have legalized assisted suicide (although only for competent adults). In Belgium and the Netherlands, euthanasia is legal for children under some circumstances. We present a case in which parents and doctors face difficult decisions about palliative care. Experts from Belgium, the Netherlands, and the United States then discuss how they would respond to such a case.
Belgium; Child; Female; Humans; Netherlands; Palliative Care; Suicide, Assisted; United States
Clément de Cléty, Stéphan; Friedel, Marie; Verhagen, A A Eduard; Lantos, John D.; and Carter, Brian S., "Please Do Whatever It Takes to End Our Daughter's Suffering!" (2016). Manuscripts, Articles, Book Chapters and Other Papers. 402.