Document Type
Article
Publication Date
11-1-2016
Identifier
DOI: 10.1542/peds.2016-1730
Abstract
We present a case of a fetal diagnosis of tricuspid atresia (TA). The pregnant woman and her husband requested that the baby be treated with only palliative care. The cardiologist did not think it would be appropriate to withhold life-prolonging surgery once the infant was born. The neonatologist argued that outcomes for TA are similar to those for hypoplastic left heart syndrome, and the standard practice at the institution was to allow parents to choose surgery or end-of-life care for those infants. The team requested an ethics consultation to assist in determining whether forgoing life-prolonging interventions in this case would be ethically supportable. In this article, we ask a pediatric intensivist, a pediatric cardiologist, and a neonatologist to discuss the ethics of withholding life-sustaining treatment of a baby with TA.
Journal Title
Pediatrics
Volume
138
Issue
5
MeSH Keywords
Cardiac Surgical Procedures; Decision Making; Female; Gestational Age; Humans; Male; Parents; Pregnancy; Pregnancy Outcome; Treatment Refusal; Tricuspid Atresia; Ultrasonography, Prenatal; Withholding Treatment; Young Adult
Recommended Citation
Kon AA, Patel A, Leuthner S, Lantos JD. Parental Refusal of Surgery in an Infant With Tricuspid Atresia. Pediatrics. 2016;138(5):e20161730. doi:10.1542/peds.2016-1730
Included in
Bioethics and Medical Ethics Commons, Cardiology Commons, Cardiovascular System Commons, Congenital, Hereditary, and Neonatal Diseases and Abnormalities Commons, Pediatrics Commons, Surgery Commons