When Adolescent and Parents Disagree on Medical Plan, Who Gets to Decide?

Creator(s)

Kali A. Hopkins
Mary A. Ott
Zeynep Salih
Gabriel T. Bosslet
John Lantos, Children's Mercy HospitalFollow

Document Type

Article

Publication Date

8-2019

Identifier

DOI: 10.1542/peds.2019-0291; PMCID: PMC7370317

Abstract

An adolescent with Duchenne Muscular Dystrophy wants a life-extending tracheostomy whereas parents do not want this for him.

Journal Title

Pediatrics

Volume

144

Issue

2

MeSH Keywords

Adolescent; Clinical Decision-Making; Dissent and Disputes; Fatal Outcome; Humans; Male; Muscular Dystrophy, Duchenne; Parents; Respiratory Distress Syndrome, Adult; Terminal Care

Keywords

Adolescent; Clinical Decision-Making; Dissent and Disputes; Fatal Outcome; Humans; Male; Muscular Dystrophy, Duchenne; Parents; Respiratory Distress Syndrome, Adult; Terminal Care

Comments

Grant support

• UL1 TR002529/TR/NCATS NIH HHS/United States

Recommended Citation

Hopkins KA, Ott MA, Salih Z, Bosslet GT, Lantos J. When Adolescent and Parents Disagree on Medical Plan, Who Gets to Decide?. Pediatrics. 2019;144(2):e20190291. doi:10.1542/peds.2019-0291