Ethical and Psychosocial Issues in Whole Genome Sequencing (WGS) for Newborns.

Creator(s)

John Lantos, Children's Mercy HospitalFollow

Document Type

Article

Publication Date

1-2019

Identifier

DOI: 10.1542/peds.2018-1099B

Abstract

In this article, I review some of the ethical issues that have arisen in the past when genetic testing has been done in newborns. I then suggest how whole genome sequencing may raise a new set of issues. Finally, I introduce a series of other articles in which the authors address different controversies that arise when whole genome sequencing is used in the newborn period.

Journal Title

Pediatrics

Volume

143

Issue

Suppl 1

First Page

1

Last Page

5

MeSH Keywords

Bioethical Issues; Genetic Carrier Screening; Genetic Testing; Humans; Infant, Newborn; Metabolism, Inborn Errors; Neonatal Screening; Specimen Handling; Whole Genome Sequencing

Keywords

Bioethical Issues; Genetic Carrier Screening; Genetic Testing; Humans; Infant, Newborn; Metabolism, Inborn Errors; Neonatal Screening; Specimen Handling; Whole Genome Sequencing

Comments

Grant support

• U19 HD077693/HD/NICHD NIH HHS/United States

Recommended Citation

Lantos JD. Ethical and Psychosocial Issues in Whole Genome Sequencing (WGS) for Newborns. Pediatrics. 2019;143(Suppl 1):S1-S5. doi:10.1542/peds.2018-1099B