Communicating with parents of children with trisomy 13 or 18 who seek cardiac interventions.

Creator(s)

Meaghann S. Weaver
John Lantos, Children's Mercy HospitalFollow
Kelly Hauschild
James Hammel
Nicole Birge
Annie Janvier

Document Type

Article

Publication Date

3-2021

Identifier

DOI: 10.1017/S1047951120004023

Abstract

This case report shares the story of a family who sought care elsewhere after their daughter was denied cardiac surgery in their home state because she had trisomy 18. This case report recommends case-by-case assessment of cardiac surgical interventions for children with trisomy 13 or 18 as informed by review of goals, assessment of comorbidities, and literature-informed practice. Coordinated care planning and interdisciplinary communication are relevant in cardiac surgical considerations for children with these underlying genetic conditions.

Journal Title

Cardiology in the young

Volume

31

Issue

3

First Page

471

Last Page

475

Keywords

Trisomy 13; cardiology; communication; paediatric palliative; trisomy 18

Recommended Citation

Weaver MS, Lantos J, Hauschild K, Hammel J, Birge N, Janvier A. Communicating with parents of children with trisomy 13 or 18 who seek cardiac interventions. Cardiol Young. 2021;31(3):471-475. doi:10.1017/S1047951120004023