Improving Clinical Care for Children With CKD: A Report From a National Kidney Foundation Scientific Workshop.

Creator(s)

Bradley A. Warady, Children's Mercy HospitalFollow
David L. Feldman
Lorraine E. Bell
Justine Bacchetta
Michelle R. Denburg
Joseph T. Flynn
Dieter Haffner
Rebecca J. Johnson, Children's Mercy HospitalFollow
Mark M. Mitsnefes
Franz Schaefer
Allison Jaure
Susan L. Furth

Document Type

Article

Publication Date

4-2023

Identifier

DOI: 10.1053/j.ajkd.2022.09.017

Abstract

Development of clinical guidelines and recommendations to address the care of pediatric patients with chronic kidney disease (CKD) has rarely included the perspectives of providers from a variety of health care disciplines or the patients and parents themselves. Accordingly, the National Kidney Foundation hosted an in-person, one and a half-day workshop that convened a multidisciplinary group of physicians, allied health care professionals, and pediatric patients with CKD and their parents, with the goal of developing key clinical recommendations regarding best practices for the clinical management of pediatric patients living with CKD. The key clinical recommendations pertained to 5 broad topics: addressing the needs of patients and parents/caregivers; modifying the progression of CKD; clinical management of CKD-mineral and bone disorder and growth retardation; clinical management of anemia, cardiovascular disease, and hypertension; and transition and transfer of pediatric patients to adult nephrology care. This report describes the recommendations generated by the participants who attended the workshop.

Journal Title

American journal of kidney diseases : the official journal of the National Kidney Foundation

Volume

81

Issue

4

First Page

466

Last Page

474

MeSH Keywords

Adult; Humans; Child; Renal Insufficiency, Chronic; Kidney; Nephrology; Physicians; Chronic Kidney Disease-Mineral and Bone Disorder

Keywords

CKD-mineral bone disorder; Chronic kidney disease (CKD); anemia; blood pressure targets; cardiovascular disease (CVD); caregivers; children; clinical management; clinical recommendations; growth retardation; hypertension; implementation; multidisciplinary consensus; patient priorities; patient-centered care; pediatric nephrology; shared decision-making; statins; transitions of care

Recommended Citation

Warady BA, Feldman DL, Bell LE, et al. Improving Clinical Care for Children With CKD: A Report From a National Kidney Foundation Scientific Workshop. Am J Kidney Dis. 2023;81(4):466-474. doi:10.1053/j.ajkd.2022.09.017