Shared decision-making in pediatric palliative care.

Document Type

Article

Publication Date

1-2024

Identifier

DOI: 10.1016/j.cppeds.2023.101551

Abstract

Shared decision-making (SDM) with parents and adolescents is normative in pediatric practice in North America. In this article we discuss how it is applicable to the practice of pediatric palliative care (PPC). As PPC itself is exemplary of patient-and-family-centered care, it often uses a SDM approach in clarifying patient and family preferences, goals, and values. This often occurs in an iterative process and across care environments, wherein the patient and family narrative is elaborated. Decisions are then made incorporating both evidence-based medical practice and the unique attributes and considerations of the patient and family.

Journal Title

Current problems in pediatric and adolescent health care

Volume

54

Issue

1

First Page

101551

Last Page

101551

MeSH Keywords

Adolescent; Child; Humans; Palliative Care; Parents; Patient-Centered Care; Decision Making

Keywords

End-of-life care; Palliative care; Parents; Shared decision-making

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