Developing a Community-Led Rare Disease ELSI Research Agenda

Authors

Jeremy R. Garrett, Children's Mercy HospitalFollow
Courtney D. Berrios, Children's Mercy HospitalFollow
Kimberly Freeman

Files

Document Type

Podcast

Hosts

Jeremy Garrett, PhD

Featured Speaker

Kimberly Freeman, BSN, RN | Courtney Berrios, MSc, ScM, CGC

Length of Episode

23:57

Description

In this episode, Dr. Jeremy Garrett is joined by Courtney Berrios and Kimberly Freeman. They will be discussing the topic of pediatric rare diseases and the development of a community-led research agenda for better understanding the needs and priorities of patients and families living with rare diseases.

Click here to stream the podcast episode.

Publication Date

2-12-2024

Recommended Citation

Garrett, Jeremy R.; Berrios, Courtney D.; and Freeman, Kimberly, "Developing a Community-Led Rare Disease ELSI Research Agenda" (2024). Pediatric Ethics Podcast. 40.
https://scholarlyexchange.childrensmercy.org/peds-ethics_podcast/40