Publication Date

4-2024

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Abstract

Introduction: Intensive interdisciplinary pain treatment (IIPT) is an effective treatment for youth impaired by chronic pain (Claus et al., 2022). IIPT programs incorporate parents in treatment, as parental distress has been found to impact health and functioning in youth with chronic pain. Research has suggested parent satisfaction may be related to increased child adherence, and in turn, reduced pain (Gorodzinsky et al., 2012). There is limited research on parental satisfaction with IIPT and the role of parent-provider communication. Method: Parents (n=99) of children in an IIPT program completed questionnaires related to treatment satisfaction, parent-provider communication (e.g., provider listened carefully, provider showed respect, provider used clear explanations), and perceived child functioning/mental health. Questionnaires were completed anonymously, approximately one week after program completion. Descriptive and inferential statistics were conducted, with qualitative analysis of parents’ written feedback providing additional context. Results: Descriptive analyses revealed overall strong ratings for communication across providers and satisfaction with the program. Correlations showed greater ratings of communication were associated with greater program satisfaction, as well as with higher perceived child functioning and mental health. Forward linear regression, controlling for perceived child functioning, revealed that among communication variables, respect from the provider (b=.39, p=.01) and use of clear explanations (b=.32, p=.01) accounted for the greatest variance in parent satisfaction (R2=58%). Qualitative analyses found most parents considered IIPT a “life changing,” positive experience. Additional feedback focused on logistics (e.g., insurance/billing), child experience (e.g., intensity level), parent involvement (e.g., increased parent therapy), and post-program transitions (e.g., to school). Conclusions: Parents overall have high satisfaction with IIPT, which could have important ramifications for family participation during and after treatment. Results highlight the importance of parents feeling respected by providers and the family’s perception that the provider used clear explanations. Parents’ qualitative feedback will be discussed in detail to consider further potential enhancements.

Disciplines

Pediatrics

Notes

Presented at the Society of Pediatric Psychology Annual Conference 2024; New Orleans, LA; April 25-27, 2024.

Parents’ Perception of an Intensive Interdisciplinary Pain Treatment for Amplified Pain Syndrome

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