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Works from 2021

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Engaging patients and parents to improve mental health intervention for youth with rheumatological disease., Oluwatunmise A. Fawole, Michelle V. Reed, Julia G. Harris, Aimee Hersh, Martha Rodriguez, Karen Onel, Erica Lawson, Tamar Rubinstein, Kaveh Ardalan, Esi Morgan, Anne Paul, Judy Barlin, R Paola Daly, Mitali Dave, Shannon Malloy, Shari Hume, Suzanne Schrandt, Laura Marrow, Angela Chapson, Donna Napoli, Michael Napoli, Miranda Moyer, Vincent Delgaizo, Ashley Danguecan, Emily von Scheven, Andrea Knight, and CARRA Investigators (Article)

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Exploring Pediatric Tele-Rheumatology Practices During COVID-19: A Survey of the PRCOIN Network., Y Ingrid Goh, Danielle R. Bullock, Janalee Taylor, Rajdeep Pooni, Tzielan C. Lee, Sheetal S. Vora, Cagri Yildirim-Toruner, Esi M. Morgan, Nancy Pan, Julia G. Harris, Andrew Warmin, Kendra Wiegand, Jon M. Burnham, and Fatima Barbar-Smiley (Article)

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Assessment of Down Syndrome-Associated Arthritis: A Survey of Down Syndrome Clinic Providers., Jordan T. Jones, Chelsey Smith, and Nasreen Talib (Article)

Works from 2020

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Validation of claims-based diagnoses of adult and pediatric neuromyelitis optica spectrum disorder and variations in diagnostic evaluation and treatment initiation., Sabrina Gmuca, Duriel I. Hardy, Sona Narula, Sharon Stoll, Julia G. Harris, Yongdong Zhao, Rui Xiao, Pamela F. Weiss, Amy T. Waldman, and Jeffrey S. Gerber (Article)

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Initial Results from a Pilot Comparative Effectiveness Study of 3 Methotrexate-based Consensus Treatment Plans for Juvenile Localized Scleroderma., Suzanne C. Li, Kathryn S. Torok, C Egla Rabinovich, Fatma Dedeoglu, Mara L. Becker, Polly J. Ferguson, Sandy D. Hong, Maria Ibarra, Katie Stewart, Elena Pope, Gloria C. Higgins, Ronald M. Laxer, Thomas Mason, Robert C. Fuhlbrigge, Tracy Andrews, and CARRA Registry Investigators (Article)

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Prosthetic temporomandibular joint reconstruction in a cohort of adolescent females with juvenile idiopathic arthritis., Michael Lypka, Karina Shah, and Jordan T. Jones (Article)

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Assessment and treatment of Down syndrome-associated arthritis: a survey of pediatric rheumatologists., Anna Nicek, Nasreen Talib, Daniel Lovell, Chelsey Smith, Mara L. Becker, and Jordan T. Jones (Article)

Works from 2019

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Childhood Arthritis and Rheumatology Research Alliance Consensus Treatment Plans for Juvenile Idiopathic Arthritis-Associated and Idiopathic Chronic Anterior Uveitis., Sheila T. Angeles-Han, Mindy S. Lo, Lauren A. Henderson, Melissa A. Lerman, Leslie Abramson, Ashley M. Cooper, Miriam F. Parsa, Lawrence S. Zemel, Tova Ronis, Timothy Beukelman, Erika Cox, H Nida Sen, Gary N. Holland, Hermine I. Brunner, Andrew Lasky, C Egla Rabinovich, and Juvenile Idiopathic Arthritis Disease-Specific and Uveitis Subcommittee of the Childhood Arthritis Rheumatology and Research Alliance (Article)

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Pain, functional disability, and their Association in Juvenile Fibromyalgia Compared to other pediatric rheumatic diseases., Mark Connelly, Jennifer E Weiss, and CARRA Registry Investigators (Article)

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Improving the Safety of Teratogen Prescribing Practices in a Pediatric Rheumatology Clinic., Ashley M. Cooper, Mara Horwitz, and Mara L. Becker (Article)

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Developing comparative effectiveness studies for a rare, understudied pediatric disease: lessons learned from the CARRA juvenile localized scleroderma consensus treatment plan pilot study., Suzanne C. Li, Robert C. Fuhlbrigge, Ronald M. Laxer, Elena Pope, Maria Ibarra, Katie Stewart, Thomas Mason, Mara L. Becker, Sandy Hong, Fatma Dedeoglu, Kathryn S. Torok, C Egla Rabinovich, Polly J. Ferguson, Marilynn Punaro, Brian M. Feldman, Tracy Andrews, Gloria C. Higgins, and CARRA Registry Investigators (Article)

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Establishing an Updated Core Domain Set for Studies in Juvenile Idiopathic Arthritis: A Report from the OMERACT 2018 JIA Workshop., Esi M. Morgan, Jane E. Munro, Jennifer Horonjeff, Ben Horgan, Beverley Shea, Brian M. Feldman, Hayyah Clairman, Clifton O. Bingham, Susan Thornhill, Vibeke Strand, Alessandra Alongi, Silvia Magni-Manzoni, Marion A J van Rossum, Richard Vesely, Jelena Vojinovic, Hermine I. Brunner, Julia G. Harris, Daniel B. Horton, Daniel J. Lovell, Melissa Mannion, Homaira Rahimi, Angelo Ravelli, Sarah Ringold, Nicolino Ruperto, M Suzanne Schrandt, Susan Shenoi, Natalie J. Shiff, Karine Toupin-April, Nikolay Tzaribachev, Pamela Weiss, and Alessandro Consolaro (Article)

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Second Case of HOIP Deficiency Expands Clinical Features and Defines Inflammatory Transcriptome Regulated by LUBAC., Hirotsugu Oda, David B. Beck, Hye Sun Kuehn, Natalia Sampaio Moura, Patrycja Hoffmann, Maria Ibarra, Jennifer Stoddard, Wanxia Li Tsai, Gustavo Gutierrez-Cruz, Massimo Gadina, Sergio D. Rosenzweig, Daniel L. Kastner, Luigi D. Notarangelo, and Ivona Aksentijevich (Article)

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Association of SLCO1B1 *14 Allele with Poor Response to Methotrexate in Juvenile Idiopathic Arthritis Patients, Laura B. Ramsey, Halima Moncrieffe, Chelsey Smith, Marc Sudman, Miranda C. Marion, Carl D. Langefeld, Mara L. Becker, and Susan D. Thompson (Article)

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Physician practices for withdrawal of medications in inactive systemic juvenile arthritis, Childhood Arthritis and Rheumatology Research Alliance (CARRA) survey., Susan Shenoi, Kabita Nanda, Grant S. Schulert, John F. Bohnsack, Ashley M. Cooper, Bridget Edghill, Miriah C. Gillispie-Taylor, Baruch Goldberg, Olha Halyabar, Thomas G. Mason, Tova Ronis, Rayfel Schneider, Richard K. Vehe, Karen Onel, and Childhood Arthritis and Rheumatology Research Alliance Systemic Juvenile Idiopathic Arthritis Workgroup (Article)

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Demographic, clinical, and treatment characteristics of the juvenile primary fibromyalgia syndrome cohort enrolled in the Childhood Arthritis and Rheumatology Research Alliance Legacy Registry., Jennifer E. Weiss, Kenneth N. Schikler, Alexis D. Boneparth, Mark Connelly, and CARRA Registry Investigators (Article)

Works from 2018

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Parent Responses to Child Pain During Intensive Interdisciplinary Pain Treatment and 1-Year Follow-Up., Melissa Pielech, Dustin Wallace, Megan Fitzgerald, and Cara M. Hoffart (Article)

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Consensus Treatment Plans for Chronic Nonbacterial Osteomyelitis Refractory to Nonsteroidal Antiinflammatory Drugs and/or With Active Spinal Lesions., Yongdong Zhao; Eveline Y. Wu; Melissa S. Oliver; Ashley M. Cooper; Matthew L. Basiaga; Sheetal S. Vora; Tzielan C. Lee; Emily Fox; Gil Amarilyo; Sara M. Stern; Jeffrey A. Dvergsten; Kathleen A. Haines; Kelly A. Rouster-Stevens; Karen B. Onel; Julie Cherian; Jonathan S. Hausmann; Paivi Miettunen; Tania Cellucci; Farzana Nuruzzaman; Angela Taneja; Karyl S. Barron; Matthew C. Hollander; Sivia K. Lapidus; Suzanne C. Li; Seza Ozen; Hermann Girschick; Ronald M. Laxer; Fatma Dedeoglu; Christian M. Hedrich; Polly J. Ferguson; and Chronic Nonbacterial Osteomyelitis/Chronic Recurrent Multifocal Osteomyelitis Study Group and the Childhood Arthritis and Rheumatology Research Alliance Scleroderma, Vasculitis, Autoinflammatory and Rare Diseases Subcommittee (Article)

Works from 2017

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Evaluation of quality indicators and disease damage in childhood-onset systemic lupus erythematosus patients., Julia G. Harris, Kristyn I. Maletta, Evelyn M. Kuhn, and Judyann C. Olson (Article)

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Fine-mapping the MHC locus in juvenile idiopathic arthritis (JIA) reveals genetic heterogeneity corresponding to distinct adult inflammatory arthritic diseases., A Hinks, J Bowes, J Cobb, H C. Ainsworth, M C. Marion, M E. Comeau, M Sudman, B Han, Juvenile Arthritis Consortium for Immunochip, Mara L. Becker, J F. Bohnsack, P I W de Bakker, J P. Haas, M Hazen, D J. Lovell, P A. Nigrovic, E Nordal, M Punnaro, A M. Rosenberg, M Rygg, S L. Smith, C A. Wise, V Videm, L R. Wedderburn, A Yarwood, R S M Yeung, S Prahalad, C D. Langefeld, S Raychaudhuri, S D. Thompson, and W Thomson (Article)

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Validation of Patient-Reported Outcomes Measurement Information System Short Forms for Use in Childhood-Onset Systemic Lupus Erythematosus., Jordan T. Jones, Adam C. Carle, Janet Wootton, Brianna Liberio, Jiha Lee, Laura E. Schanberg, Jun Ying, Esi Morgan DeWitt, and Hermine I. Brunner (Article)

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Pilot study comparing the Childhood Arthritis & Rheumatology Research Alliance (CARRA) systemic Juvenile Idiopathic Arthritis Consensus Treatment Plans., Yukiko Kimura, Sriharsha Grevich, Timothy Beukelman, Esi Morgan, Peter A. Nigrovic, Kelly Mieszkalski, T Brent Graham, Maria Ibarra, Norman Ilowite, Marisa Klein-Gitelman, Karen Onel, Sampath Prahalad, Marilynn Punaro, Sarah Ringold, Dana Toib, Heather Van Mater, Jennifer E. Weiss, Pamela F. Weiss, Laura E. Schanberg, and CARRA Registry Investigators (Article)

Works from 2016

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Monitoring change in volume of calcifications in juvenile idiopathic inflammatory myopathy: a pilot study using low dose computed tomography., Maria Ibarra, Cynthia Rigsby, Gabrielle A. Morgan, Christina L. Sammet, Chiang-Ching Huang, Dong Xu, Ira N. Targoff, and Lauren M. Pachman (Article)

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Decreasing patient cost and travel time through pediatric rheumatology telemedicine visits., Elizabeth A. Kessler, Ashley K. Sherman, and Mara L. Becker (Article)