Works from 2024
Disease Course, Treatments, and Outcomes of Children With Systemic Juvenile Idiopathic Arthritis-Associated Lung Disease., Yannan Huang, Laura Sompii-Montgomery, Jessica Patti, Alex Pickering, Shima Yasin, Thuy Do, Elizabeth Baker, Denny Gao, Rabheh Abdul-Aziz, Edward M. Behrens, Scott Canna, Matthew Clark, Dominic O. Co, Kathleen P. Collins, Barbara Eberhard, Monica Friedman, Thomas B. Graham, Timothy Hahn, Aimee O. Hersh, Patricia Hobday, Michael J. Holland, Jennifer Huggins, Pai-Yue Lu, Melissa L. Mannion, Cynthia K. Manos, Jessica Neely, Karen Onel, Amir B. Orandi, Andrea Ramirez, Adam Reinhardt, Mona Riskalla, Laisa Santiago, Matthew L. Stoll, Tracy Ting, Alexei A. Grom, Christopher Towe, and Grant S. Schulert (Article)
Pediatric systemic juvenile idiopathic arthritis-related lung disease: Description of clinical cohort and review of management., Chandra Swanson, Erin Khan, Ashley M. Cooper, Maria Ibarra, and Jade B. Tam-Williams (Article)
Works from 2023
Pediatric Rheumatology Care and Outcomes Improvement Network's Quality Measure Set to Improve Care of Children With Juvenile Idiopathic Arthritis., Catherine A. Bingham, Julia G. Harris, Tingting Qiu, Mileka Gilbert, Sheetal S. Vora, Cagri Yildirim-Toruner, Kerry Ferraro, Daniel J. Lovell, Janalee Taylor, Melissa L. Mannion, Jennifer E. Weiss, Ronald M. Laxer, Michael Shishov, Edward J. Oberle, Beth S. Gottlieb, Tzielan C. Lee, Nancy Pan, Jon M. Burnham, Danielle C. Fair, Michelle Batthish, Melissa M. Hazen, Charles H. Spencer, Esi M. Morgan, and Pediatric Rheumatology Care and Outcomes Improvement Network (Article)
Barriers to the Diagnosis, Care, and Management of Pediatric Patients With Ehlers-Danlos Syndrome in the United States: A Qualitative Analysis., William R. Black, Lora L. Black, and Jordan T. Jones (Article)
Development of a Multidisciplinary Clinic for Patients with Ehlers Danlos Syndromes: Considerations and Strategies., William R. Black, Jordan T. Jones, Eric T. Rush, Lindsey Malloy-Walton, and Ashley Harding (Article)
Bone Marrow Transplant For Macrophage Activation Syndrome In Systemic Juvenile Idiopathic Arthritis, Shailly Gaur, Michael J. Holland, J Allyson Hays, and Ibrahim A. Ahmed (Poster)
Diagnosis Does Not Automatically Remove Stigma for Young People with Invisible Illness., Cara M. Hoffart and Dustin Wallace (Article)
Normal joint range of motion in children with Down syndrome., Jordan T. Jones, Nasreen Talib, Emily Cramer, Meg E. Gasparovich, Elizabeth N. Schroeder, Matthew J. McLaughlin, and Jacqueline Kitchen (Article)
Dietary Effects on Pain Symptoms in Patients with Fibromyalgia Syndrome: Systematic Review and Future Directions., Emma K. Maddox, Shawn C. Massoni, Cara M. Hoffart, and Yumie Takata (Article)
The SPN Pediatric Nursing Excellence Model: Differentiating pediatrics., Betsy M. McDowell, Rhonda Cooper, Ann M. Bowling, Kay J. Cowen, Kim Eskew, Rae Ann Kingsley, Debra Ridling, and Lori Williams (Article)
Humoral and cellular response to the COVID-19 vaccine in immunocompromised children., Heather A. Morgans, Todd Bradley, Linda Flebbe-Rehwaldt, Rangaraj Selvarangan, Amber Bagherian, Aliessa P. Barnes, Julie A. Bass, Ashley M. Cooper, Ryan T. Fischer, Steve Kleiboeker, Brian R. Lee, Cas LeMaster, Kelsey Markus, Stephen Morrison, Angela Myers, Douglas Myers, Erin Payne, Jennifer E. Schuster, Sarah Standley, Andrea B. Wieser, and Bradley A. Warady (Article)
Multicenter Study of Utility and Acceptability of Depression and Anxiety Screening in Adolescents and Young Adults With Childhood-Onset Systemic Lupus., Tamar B. Rubinstein, Marija Dionizovik-Dimanovski, Alaina M. Davis, Chelsey Smith, Lauren Faust, Beth Rutstein, Manda Mitchell, Jordan T. Jones, Julia G. Harris, Martha Rodriguez, Melissa Tesher, Karen Onel, Vilma Gabbay, Ruth E K Stein, Emily von Scheven, Andrea M. Knight, and CARRA Mental Health Workgroup (Article)
Objective and self-report outcomes of intensive interdisciplinary pain treatment for youth with chronic pain with and without functional neurological disorder, Kelsey Zaugg, Dustin Wallace, Kayla Friesen, and Cara M. Hoffart (Poster)
Works from 2022
Assessing the Validity and Reliability of the Effects of Youngsters' Eyesight on Quality of Life Questionnaire Among Children With Uveitis., Amy Cassedy, Mekibib Altaye, Jennifer Andringa, Ashley M. Cooper, Carolyn Drews-Botsch, George Engelhard, Theresa Hennard, Gary N. Holland, Kirsten Jenkins, Scott R. Lambert, Jessi Lipscomb, Courtney McCracken, Deborah K. McCurdy, Joseph McDonald, Najima Mwase, Sampath Prahalad, Erin Stahl, Virginia Miraldi Utz, A Adrienne Walker, Steven Yeh, and Sheila T. Angeles-Han (Article)
Genomic answers for children: Dynamic analyses of >1000 pediatric rare disease genomes., Ana S A Cohen, Emily G. Farrow, Ahmed Abdelmoity, Joseph Alaimo, Shivarajan Manickavasagam Amudhavalli, John Anderson, Lalit R. Bansal, Lauren E. Bartik, Primo Baybayan, Bradley Belden, Courtney D. Berrios, Rebecca L. Biswell, Pawel Buczkowicz, Orion Buske, Shreyasee Chakraborty, Warren A. Cheung, Keith A. Coffman, Ashley M. Cooper, Laura A. Cross, Tom Curran, Thuy Tien T. Dang, Mary M. Elfrink, Kendra Engleman, Erin Day Fecske, Cynthia Fieser, Keely M. Fitzgerald, Emily Fleming, Randi N. Gadea, Jennifer L. Gannon, Rose N. Gelineau-Morel, Margaret Gibson, Jeffrey Goldstein, Elin Grundberg, Kelsee Halpin, Brian S. Harvey, Bryce Heese, Wendy Hein, Suzanne M. Herd, Susan Starling Hughes, Mohammed Ilyas, Jill Jacobson, Janda L. Jenkins, Shao Jiang, Jeffrey J. Johnston, Kathryn Keeler, Jonas Korlach, Jennifer Kussman, Christine Lambert, Caitlin E. Lawson, Jean-Baptist LePichon, J Steven Leeder, Vicki C. Little, Daniel A. Louiselle, Michael Lypka, Brittany D. McDonald, Neil Miller, Ann Modrcin, Annapoorna Nair, Shelby H. Neal, Christopher M. Oermann, Donna M. Pacicca, Kailash Pawar, Nyshele L. Posey, Nigel Price, Laura M B Puckett, Julio Quezada, Nikita Raje, William J. Rowell, Eric T. Rush, Venkatesh Sampath, Carol J. Saunders, Caitlin Schwager, Richard M. Schwend, Elizabeth Shaffer, Craig Smail, Sarah E. Soden, Meghan Strenk, Bonnie Sullivan, Brooke Sweeney, Jade B. Tam-Williams, Adam Walter, Holly Welsh, Aaron M. Wenger, Laurel K. Willig, Yun Yan, Scott T. Younger, Dihong Zhou, Tricia N. Zion, Isabelle Thiffault, and Tomi Pastinen (Article)
Consensus Approach to a Treat-to-target Strategy in Juvenile Idiopathic Arthritis Care: Report From the 2020 PR-COIN Consensus Conference., Tala El Tal, Meghan E. Ryan, Brian M. Feldman, Catherine April Bingham, Jon M. Burnham, Michelle Batthish, Danielle Bullock, Kerry Ferraro, Mileka Gilbert, Miriah Gillispie-Taylor, Beth Gottlieb, Julia G. Harris, Melissa Hazen, Ronald M. Laxer, Tzielan Chang Lee, Daniel Lovell, Melissa Mannion, Laura Noonan, Edward Oberle, Janalee Taylor, Jennifer E. Weiss, Cagri Yildirim Toruner, and Esi M. Morgan (Article)
2021 American College of Rheumatology/Vasculitis Foundation Guideline for the Management of Kawasaki Disease., Mark Gorelik, Sharon A. Chung, Kaveh Ardalan, Bryce A. Binstadt, Kevin Friedman, Kristen Hayward, Lisa F. Imundo, Sivia K. Lapidus, Susan Kim, Mary Beth Son, Sangeeta Sule, Adriana H. Tremoulet, Heather Van Mater, Cagri Yildirim-Toruner, Carol A. Langford, Mehrdad Maz, Andy Abril, Gordon Guyatt, Amy M. Archer, Doyt L. Conn, Kathy A. Full, Peter C. Grayson, Maria Ibarra, Peter A. Merkel, Rennie L. Rhee, Philip Seo, John H. Stone, Robert P. Sundel, Omar I. Vitobaldi, Ann Warner, Kevin Byram, Anisha B. Dua, Nedaa Husainat, Karen E. James, Mohamad Kalot, Yih Chang Lin, Jason M. Springer, Marat Turgunbaev, Alexandra Villa-Forte, Amy S. Turner, and Reem A. Mustafa (Article)
2021 American College of Rheumatology/Vasculitis Foundation Guideline for the Management of Kawasaki Disease., Mark Gorelik, Sharon A. Chung, Kaveh Ardalan, Bryce A. Binstadt, Kevin Friedman, Kristen Hayward, Lisa F. Imundo, Sivia K. Lapidus, Susan Kim, Mary Beth Son, Sangeeta Sule, Adriana H. Tremoulet, Heather Van Mater, Cagri Yildirim-Toruner, Carol A. Langford, Mehrdad Maz, Andy Abril, Gordon Guyatt, Amy M. Archer, Doyt L. Conn, Kathy A. Full, Peter C. Grayson, Maria Ibarra, Peter A. Merkel, Rennie L. Rhee, Philip Seo, John H. Stone, Robert P. Sundel, Omar I. Vitobaldi, Ann Warner, Kevin Byram, Anisha B. Dua, Nedaa Husainat, Karen E. James, Mohamad Kalot, Yih Chang Lin, Jason M. Springer, Marat Turgunbaev, Alexandra Villa-Forte, Amy S. Turner, and Reem A. Mustafa (Article)
Improving Pneumococcal Vaccination Rates in High-risk Children in Specialty Clinics., Julia G. Harris, Luke A. Harris, Liset Olarte, Claire Elson, Rachel Moran, Douglas Blowey, and Rana El Feghaly (Article)
Treatment of Down Syndrome-Associated Arthritis with JAK Inhibition., Jordan T. Jones (Article)
Provider Knowledge and Experience in Care, Management, and Education of Pediatric Ehlers-Danlos syndrome., Jordan T. Jones and William R. Black (Article)
Resource utilization and multidisciplinary care needs for patients with Ehlers-Danlos syndrome., Jordan T. Jones, William R. Black, Wendy Cogan, and Elisabeth Callen (Article)
Gender dysphoria in adolescents with Ehlers-Danlos syndrome., Jordan T. Jones, William R. Black, Christine Moser, Eric T. Rush, and Lindsey Malloy-Walton (Article)
Down Syndrome-Associated Arthritis (DA): Diagnostic and Management Challenges., Jordan T. Jones, Jacqueline Kitchen, and Nasreen Talib (Article)
Eosinophilic Myocarditis Secondary to Hypereosinophilic Syndrome vs. Eosinophilic Granulomatosis with Polyangiitis: A Diagnostic Dilemma, Nathan LaVoy, Brian Birnbaum, Julia G. Harris, Aarti Pandya, and Allison Taber (Poster)
Comprehensive Assessment of Quality of Life, Functioning, and Mental Health in Children With Juvenile Idiopathic Arthritis and Noninfectious Uveitis., Joseph McDonald, Amy Cassedy, Mekibib Altaye, Jennifer Andringa, Ashley M. Cooper, Carolyn Drews-Botsch, George Engelhard, Theresa Hennard, Gary N. Holland, Kirsten Jenkins, Scott R. Lambert, Jessi Lipscomb, Courtney McCracken, Deborah K. McCurdy, Najima Mwase, Sampath Prahalad, Jessica Shantha, Erin Stahl, Virginia Miraldi Utz, A Adrienne Walker, Steven Yeh, and Sheila T. Angeles-Han (Article)
2021 American College of Rheumatology Guideline for the Treatment of Juvenile Idiopathic Arthritis: Recommendations for Nonpharmacologic Therapies, Medication Monitoring, Immunizations, and Imaging., Karen B. Onel, Daniel B. Horton, Daniel J. Lovell, Susan Shenoi, Carlos A. Cuello, Sheila T. Angeles-Han, Mara L. Becker, Randy Q. Cron, Brian M. Feldman, Polly J. Ferguson, Harry Gewanter, Jaime Guzman, Yukiko Kimura, Tzielan Lee, Katherine Murphy, Peter A. Nigrovic, Michael J. Ombrello, C Egla Rabinovich, Melissa Tesher, Marinka Twilt, Marisa Klein-Gitelman, Fatima Barbar-Smiley, Ashley M. Cooper, Barbara Edelheit, Miriah Gillispie-Taylor, Kimberly Hays, Melissa L. Mannion, Rosemary Peterson, Elaine Flanagan, Nadine Saad, Nancy Sullivan, Ann Marie Szymanski, Rebecca Trachtman, Marat Turgunbaev, Keila Veiga, Amy S. Turner, and James T. Reston (Article)
2021 American College of Rheumatology Guideline for the Treatment of Juvenile Idiopathic Arthritis: Recommendations for Nonpharmacologic Therapies, Medication Monitoring, Immunizations, and Imaging., Karen B. Onel, Daniel B. Horton, Daniel J. Lovell, Susan Shenoi, Carlos A. Cuello, Sheila T. Angeles-Han, Mara L. Becker, Randy Q. Cron, Brian M. Feldman, Polly J. Ferguson, Harry Gewanter, Jaime Guzman, Yukiko Kimura, Tzielan Lee, Katherine Murphy, Peter A. Nigrovic, Michael J. Ombrello, C Egla Rabinovich, Melissa Tesher, Marinka Twilt, Marisa Klein-Gitelman, Fatima Barbar-Smiley, Ashley M. Cooper, Barbara Edelheit, Miriah Gillispie-Taylor, Kimberly Hays, Melissa L. Mannion, Rosemary Peterson, Elaine Flanagan, Nadine Saad, Nancy Sullivan, Ann Marie Szymanski, Rebecca Trachtman, Marat Turgunbaev, Keila Veiga, Amy S. Turner, and James T. Reston (Article)
2021 American College of Rheumatology Guideline for the Treatment of Juvenile Idiopathic Arthritis: Therapeutic Approaches for Oligoarthritis, Temporomandibular Joint Arthritis, and Systemic Juvenile Idiopathic Arthritis., Karen B. Onel, Daniel B. Horton, Daniel J. Lovell, Susan Shenoi, Carlos A. Cuello, Sheila T. Angeles-Han, Mara L. Becker, Randy Q. Cron, Brian M. Feldman, Polly J. Ferguson, Harry Gewanter, Jaime Guzman, Yukiko Kimura, Tzielan Lee, Katherine Murphy, Peter A. Nigrovic, Michael J. Ombrello, C Egla Rabinovich, Melissa Tesher, Marinka Twilt, Marisa Klein-Gitelman, Fatima Barbar-Smiley, Ashley M. Cooper, Barbara Edelheit, Miriah Gillispie-Taylor, Kimberly Hays, Melissa L. Mannion, Rosemary Peterson, Elaine Flanagan, Nadine Saad, Nancy Sullivan, Ann Marie Szymanski, Rebecca Trachtman, Marat Turgunbaev, Keila Veiga, Amy S. Turner, and James T. Reston (Article)
2021 American College of Rheumatology Guideline for the Treatment of Juvenile Idiopathic Arthritis: Therapeutic Approaches for Oligoarthritis, Temporomandibular Joint Arthritis, and Systemic Juvenile Idiopathic Arthritis., Karen B. Onel, Daniel B. Horton, Daniel J. Lovell, Susan Shenoi, Carlos A. Cuello, Sheila T. Angeles-Han, Mara L. Becker, Randy Q. Cron, Brian M. Feldman, Polly J. Ferguson, Harry Gewanter, Jaime Guzman, Yukiko Kimura, Tzielan Lee, Katherine Murphy, Peter A. Nigrovic, Michael J. Ombrello, C Egla Rabinovich, Melissa Tesher, Marinka Twilt, Marisa Klein-Gitelman, Fatima Barbar-Smiley, Ashley M. Cooper, Barbara Edelheit, Miriah Gillispie-Taylor, Kimberly Hays, Melissa L. Mannion, Rosemary Peterson, Elaine Flanagan, Nadine Saad, Nancy Sullivan, Ann Marie Szymanski, Rebecca Trachtman, Marat Turgunbaev, Keila Veiga, Amy S. Turner, and James T. Reston (Article)
Works from 2021
Maintaining Hepatitis B Protection in Immunocompromised Pediatric Rheumatology and Inflammatory Bowel Disease Patients., Najla Aljaberi, Enas Ghulam, Emily A. Smitherman, Leslie Favier, Dana M H Dykes, Lara A. Danziger-Isakov, Rebecca C. Brady, and Jennifer Huggins (Article)
Childhood Sjögren syndrome: features of an international cohort and application of the 2016 ACR/EULAR classification criteria., Matthew L. Basiaga, Sara M. Stern, Jay J. Mehta, Cuoghi Edens, Rachel L. Randell, Anna Pomorska, Ninela Irga-Jaworska, Maria Ibarra, Claudia Bracaglia, Rebecca Nicolai, Gordana Susic, Alexis Boneparth, Hemalatha Srinivasalu, Brian Dizon, Ankur A. Kamdar, Baruch Goldberg, Sheila Knupp-Oliveira, Jordi Antón, Juan M Mosquera, Simone Appenzeller, Kathleen M. O'Neil, Stella A. Protopapas, Claudia Saad-Magalhães, Jonathan D. Akikusa, Akaluck Thatayatikom, Seunghee Cha, Juan Carlos Nieto-González, Mindy S. Lo, Erin Brennan Treemarcki, Naoto Yokogawa, Scott M Lieberman, and Childhood Arthritis and Rheumatology Research Alliance and the International Childhood Sjögren Syndrome Workgroup (Article)
2021 American College of Rheumatology/Vasculitis Foundation Guideline for the Management of Polyarteritis Nodosa., Sharon A. Chung, Mark Gorelik, Carol A. Langford, Mehrdad Maz, Andy Abril, Gordon Guyatt, Amy M. Archer, Doyt L. Conn, Kathy A. Full, Peter C. Grayson, Maria Ibarra, Lisa F. Imundo, Susan Kim, Peter A. Merkel, Rennie L. Rhee, Philip Seo, John H. Stone, Sangeeta Sule, Robert P P. Sundel, Omar I. Vitobaldi, Ann Warner, Kevin Byram, Anisha B. Dua, Nedaa Husainat, Karen E. James, Mohamad Kalot, Yih Chang Lin, Jason M. Springer, Marat Turgunbaev, Alexandra Villa-Forte, Amy S. Turner, and Reem A. Mustafa (Article)
2021 American College of Rheumatology/Vasculitis Foundation Guideline for the Management of Polyarteritis Nodosa., Sharon A. Chung, Mark Gorelik, Carol A. Langford, Mehrdad Maz, Andy Abril, Gordon Guyatt, Amy M. Archer, Doyt L. Conn, Kathy A. Full, Peter C. Grayson, Maria Ibarra, Lisa F. Imundo, Susan Kim, Peter A. Merkel, Rennie L. Rhee, Philip Seo, John H. Stone, Sangeeta Sule, Robert P. Sundel, Omar I. Vitobaldi, Ann Warner, Kevin Byram, Anisha B. Dua, Nedaa Husainat, Karen E. James, Mohamad Kalot, Yih Chang Lin, Jason M. Springer, Marat Turgunbaev, Alexandra Villa-Forte, Amy S. Turner, and Reem A. Mustafa (Article)
2021 American College of Rheumatology/Vasculitis Foundation Guideline for the Management of Antineutrophil Cytoplasmic Antibody-Associated Vasculitis., Sharon A. Chung, Carol A. Langford, Mehrdad Maz, Andy Abril, Mark Gorelik, Gordon Guyatt, Amy M. Archer, Doyt L. Conn, Kathy A. Full, Peter C. Grayson, Maria Ibarra, Lisa F. Imundo, Susan Kim, Peter A. Merkel, Rennie L. Rhee, Philip Seo, John H. Stone, Sangeeta Sule, Robert P. Sundel, Omar I. Vitobaldi, Ann Warner, Kevin Byram, Anisha B. Dua, Nedaa Husainat, Karen E. James, Mohamad A. Kalot, Yih Chang Lin, Jason M. Springer, Marat Turgunbaev, Alexandra Villa-Forte, Amy S. Turner, and Reem A. Mustafa (Article)
2021 American College of Rheumatology/Vasculitis Foundation Guideline for the Management of Antineutrophil Cytoplasmic Antibody-Associated Vasculitis., Sharon A. Chung, Carol A. Langford, Mehrdad Maz, Andy Abril, Mark Gorelik, Gordon Guyatt, Amy M. Archer, Doyt L. Conn, Kathy A. Full, Peter C. Grayson, Maria Ibarra, Lisa F. Imundo, Susan Kim, Peter A. Merkel, Rennie L. Rhee, Philip Seo, John H. Stone, Sangeeta Sule, Robert P. Sundel, Omar I. Vitobaldi, Ann Warner, Kevin Byram, Anisha B. Dua, Nedaa Husainat, Karen E. James, Mohamad A. Kalot, Yih Chang Lin, Jason M. Springer, Marat Turgunbaev, Alexandra Villa-Forte, Amy S. Turner, and Reem A. Mustafa (Article)
Knowledge about juvenile idiopathic arthritis-associated uveitis: more frequent reminders are associated with higher patient and family uveitis knowledge., Ashley M. Cooper, Elaine R. Flanagan, Tova Ronis, Baruch Goldberg, Ashley K. Sherman, Chelsey Smith, Gary N. Holland, and CARRA Uveitis Workgroup (Article)
Engaging patients and parents to improve mental health intervention for youth with rheumatological disease., Oluwatunmise A. Fawole, Michelle V. Reed, Julia G. Harris, Aimee Hersh, Martha Rodriguez, Karen Onel, Erica Lawson, Tamar Rubinstein, Kaveh Ardalan, Esi Morgan, Anne Paul, Judy Barlin, R Paola Daly, Mitali Dave, Shannon Malloy, Shari Hume, Suzanne Schrandt, Laura Marrow, Angela Chapson, Donna Napoli, Michael Napoli, Miranda Moyer, Vincent Delgaizo, Ashley Danguecan, Emily von Scheven, Andrea Knight, and CARRA Investigators (Article)
Exploring Pediatric Tele-Rheumatology Practices During COVID-19: A Survey of the PRCOIN Network., Y Ingrid Goh, Danielle R. Bullock, Janalee Taylor, Rajdeep Pooni, Tzielan C. Lee, Sheetal S. Vora, Cagri Yildirim-Toruner, Esi M. Morgan, Nancy Pan, Julia G. Harris, Andrew Warmin, Kendra Wiegand, Jon M. Burnham, and Fatima Barbar-Smiley (Article)
Improving Pneumococcal Vaccination Rates in Rheumatology Clinics., Julia G. Harris (Editorial)
Down Syndrome-Associated Arthritis Cohort in the New Childhood Arthritis and Rheumatology Research Alliance Registry: Clinical Characteristics, Treatment, and Outcomes., Jordan T. Jones, Chelsey Smith, Mara L. Becker, Daniel Lovell, and CARRA Registry Investigators (Article)
Assessment of Down Syndrome-Associated Arthritis: A Survey of Down Syndrome Clinic Providers., Jordan T. Jones, Chelsey Smith, and Nasreen Talib (Article)
Brief Musculoskeletal Screen and Patient Education for Down Syndrome-Associated Arthritis., Jordan T. Jones, Chelsey Smith, and Nasreen Talib (Article)
A Girl with Limp and Rash on the Palms and Soles., Susamita Kesh, Jacob S. Ward, and Ashley M. Cooper (Article)
Inflammatory Bowel Disease in Children With Systemic Juvenile Idiopathic Arthritis., Justine Maller, Emily Fox, K T Park, Sarah Sertial Paul, Kevin Baszis, Charlotte Borocco, Sampath Prahalad, Pierre Quartier, Adam Reinhardt, Dieneke Schonenberg-Meinema, Lauren Shipman-Duensing, Maria Teresa Terreri, Julia Simard, Idit Lavi, Elizabeth Chalom, Joyce Hsu, Devy Zisman, Elizabeth D Mellins, and CARRA Legacy Registry Investigators (Article)
2021 American College of Rheumatology/Vasculitis Foundation Guideline for the Management of Giant Cell Arteritis and Takayasu Arteritis., Mehrdad Maz, Sharon A. Chung, Andy Abril, Carol A. Langford, Mark Gorelik, Gordon Guyatt, Amy M. Archer, Doyt L. Conn, Kathy A. Full, Peter C. Grayson, Maria Ibarra, Lisa F. Imundo, Susan Kim, Peter A. Merkel, Rennie L. Rhee, Philip Seo, John H. Stone, Sangeeta Sule, Robert P. Sundel, Omar I. Vitobaldi, Ann Warner, Kevin Byram, Anisha B. Dua, Nedaa Husainat, Karen E. James, Mohamad A. Kalot, Yih Chang Lin, Jason M. Springer, Marat Turgunbaev, Alexandra Villa-Forte, Amy S. Turner, and Reem A. Mustafa (Article)
2021 American College of Rheumatology/Vasculitis Foundation Guideline for the Management of Giant Cell Arteritis and Takayasu Arteritis., Mehrdad Maz, Sharon A. Chung, Andy Abril, Carol A. Langford, Mark Gorelik, Gordon Guyatt, Amy M. Archer, Doyt L. Conn, Kathy A. Full, Peter C. Grayson, Maria Ibarra, Lisa F. Imundo, Susan Kim, Peter A. Merkel, Rennie L. Rhee, Philip Seo, John H. Stone, Sangeeta Sule, Robert P. Sundel, Omar I. Vitobaldi, Ann Warner, Kevin Byram, Anisha B. Dua, Nedaa Husainat, Karen E. James, Mohamad A. Kalot, Yih Chang Lin, Jason M. Springer, Marat Turgunbaev, Alexandra Villa-Forte, Amy S. Turner, and Reem A. Mustafa (Article)
Establishing core domain sets for Chronic Nonbacterial Osteomyelitis (CNO) and Synovitis, Acne, Pustulosis, Hyperostosis, Osteitis (SAPHO): A report from the OMERACT 2020 special interest group., Melissa Oliver, Aruni Jayatilleke, Eveline Wu, Farzana Nuruzzaman, Cassyanne Aguiar, Aleksander Lenert, Micol Romano, Gabriele Simonini, Samir Shah, Matthew Hollander, Alhanouf Alsaleem, Emily Fox, Alexander Theos, Athimalaipet V. Ramanan, Anja Schnabel, Sivia Lapidus, Lori Tucker, Karen Onel, Seza Ozen, Fatma Dedeoglu, Polly J. Ferguson, Beverley Shea, Jonathan Akikusa, Christian Hedrich, Philip Mease, and Yongdong Zhao (Article)
Comparing Three Music Therapy Interventions For Anxiety And Relaxation In Youth With Amplified Pain, Ashley Scheufler, Dustin Wallace, and Emily Fox
Comparing Three Music Therapy Interventions for Anxiety and Relaxation in Youth With Amplified Pain., Ashley Scheufler, Dustin Wallace, and Emily Fox (Article)
Atypical Presentation of Systemic Arthritis in a Toddler with Down Syndrome., Emily Worley, Weijie Li, and Jordan T. Jones (Article)
Works from 2020
Rheumatic diseases, Leslie Favier, Onengiya Harry, and Kristin Loiselle Rich (Book Chapter)
Validation of claims-based diagnoses of adult and pediatric neuromyelitis optica spectrum disorder and variations in diagnostic evaluation and treatment initiation., Sabrina Gmuca, Duriel I. Hardy, Sona Narula, Sharon Stoll, Julia G. Harris, Yongdong Zhao, Rui Xiao, Pamela F. Weiss, Amy T. Waldman, and Jeffrey S. Gerber (Article)
Initial Results from a Pilot Comparative Effectiveness Study of 3 Methotrexate-based Consensus Treatment Plans for Juvenile Localized Scleroderma., Suzanne C. Li, Kathryn S. Torok, C Egla Rabinovich, Fatma Dedeoglu, Mara L. Becker, Polly J. Ferguson, Sandy D. Hong, Maria Ibarra, Katie Stewart, Elena Pope, Gloria C. Higgins, Ronald M. Laxer, Thomas Mason, Robert C. Fuhlbrigge, Tracy Andrews, and CARRA Registry Investigators (Article)
Prosthetic temporomandibular joint reconstruction in a cohort of adolescent females with juvenile idiopathic arthritis., Michael Lypka, Karina Shah, and Jordan T. Jones (Article)
Assessment and treatment of Down syndrome-associated arthritis: a survey of pediatric rheumatologists., Anna Nicek, Nasreen Talib, Daniel Lovell, Chelsey Smith, Mara L. Becker, and Jordan T. Jones (Article)
Works from 2019
Childhood Arthritis and Rheumatology Research Alliance Consensus Treatment Plans for Juvenile Idiopathic Arthritis-Associated and Idiopathic Chronic Anterior Uveitis., Sheila T. Angeles-Han, Mindy S. Lo, Lauren A. Henderson, Melissa A. Lerman, Leslie Abramson, Ashley M. Cooper, Miriam F. Parsa, Lawrence S. Zemel, Tova Ronis, Timothy Beukelman, Erika Cox, H Nida Sen, Gary N. Holland, Hermine I. Brunner, Andrew Lasky, C Egla Rabinovich, and Juvenile Idiopathic Arthritis Disease-Specific and Uveitis Subcommittee of the Childhood Arthritis Rheumatology and Research Alliance (Article)
2019 American College of Rheumatology/Arthritis Foundation Guideline for the Screening, Monitoring, and Treatment of Juvenile Idiopathic Arthritis-Associated Uveitis., Sheila T. Angeles-Han, Sarah Ringold, Timothy Beukelman, Daniel Lovell, Carlos A A. Cuello, Mara L. Becker, Robert A. Colbert, Brian M. Feldman, Gary N. Holland, Polly J. Ferguson, Harry Gewanter, Jaime Guzman, Jennifer Horonjeff, Peter A. Nigrovic, Michael J. Ombrello, Murray H. Passo, Matthew L. Stoll, C Egla Rabinovich, H Nida Sen, Rayfel Schneider, Olha Halyabar, Kimberly Hays, Amit Aakash Shah, Nancy Sullivan, Ann Marie Szymanski, Marat Turgunbaev, Amy Turner, and James Reston (Article)
2019 American College of Rheumatology/Arthritis Foundation Guideline for the Screening, Monitoring, and Treatment of Juvenile Idiopathic Arthritis-Associated Uveitis., Sheila T. Angeles-Han, Sarah Ringold, Timothy Beukelman, Daniel Lovell, Carlos A. Cuello, Mara L. Becker, Robert A. Colbert, Brian M. Feldman, Gary N. Holland, Polly J. Ferguson, Harry Gewanter, Jaime Guzman, Jennifer Horonjeff, Peter A. Nigrovic, Michael J. Ombrello, Murray H. Passo, Matthew L. Stoll, C Egla Rabinovich, H Nida Sen, Rayfel Schneider, Olha Halyabar, Kimberly Hays, Amit Aakash Shah, Nancy Sullivan, Ann Marie Szymanski, Marat Turgunbaev, Amy Turner, and James Reston (Article)
Pain, functional disability, and their Association in Juvenile Fibromyalgia Compared to other pediatric rheumatic diseases., Mark Connelly, Jennifer E Weiss, and CARRA Registry Investigators (Article)
Improving the Safety of Teratogen Prescribing Practices in a Pediatric Rheumatology Clinic., Ashley M. Cooper, Mara Horwitz, and Mara L. Becker (Article)
Developing comparative effectiveness studies for a rare, understudied pediatric disease: lessons learned from the CARRA juvenile localized scleroderma consensus treatment plan pilot study., Suzanne C. Li, Robert C. Fuhlbrigge, Ronald M. Laxer, Elena Pope, Maria Ibarra, Katie Stewart, Thomas Mason, Mara L. Becker, Sandy Hong, Fatma Dedeoglu, Kathryn S. Torok, C Egla Rabinovich, Polly J. Ferguson, Marilynn Punaro, Brian M. Feldman, Tracy Andrews, Gloria C. Higgins, and CARRA Registry Investigators (Article)
Establishing an Updated Core Domain Set for Studies in Juvenile Idiopathic Arthritis: A Report from the OMERACT 2018 JIA Workshop., Esi M. Morgan, Jane E. Munro, Jennifer Horonjeff, Ben Horgan, Beverley Shea, Brian M. Feldman, Hayyah Clairman, Clifton O. Bingham, Susan Thornhill, Vibeke Strand, Alessandra Alongi, Silvia Magni-Manzoni, Marion A J van Rossum, Richard Vesely, Jelena Vojinovic, Hermine I. Brunner, Julia G. Harris, Daniel B. Horton, Daniel J. Lovell, Melissa Mannion, Homaira Rahimi, Angelo Ravelli, Sarah Ringold, Nicolino Ruperto, M Suzanne Schrandt, Susan Shenoi, Natalie J. Shiff, Karine Toupin-April, Nikolay Tzaribachev, Pamela Weiss, and Alessandro Consolaro (Article)
Second Case of HOIP Deficiency Expands Clinical Features and Defines Inflammatory Transcriptome Regulated by LUBAC., Hirotsugu Oda, David B. Beck, Hye Sun Kuehn, Natalia Sampaio Moura, Patrycja Hoffmann, Maria Ibarra, Jennifer Stoddard, Wanxia Li Tsai, Gustavo Gutierrez-Cruz, Massimo Gadina, Sergio D. Rosenzweig, Daniel L. Kastner, Luigi D. Notarangelo, and Ivona Aksentijevich (Article)
Association of SLCO1B1 *14 Allele with Poor Response to Methotrexate in Juvenile Idiopathic Arthritis Patients, Laura B. Ramsey, Halima Moncrieffe, Chelsey Smith, Marc Sudman, Miranda C. Marion, Carl D. Langefeld, Mara L. Becker, and Susan D. Thompson (Article)
2019 American College of Rheumatology/Arthritis Foundation Guideline for the Treatment of Juvenile Idiopathic Arthritis: Therapeutic Approaches for Non-Systemic Polyarthritis, Sacroiliitis, and Enthesitis., Sarah Ringold, Sheila T. Angeles-Han, Timothy Beukelman, Daniel Lovell, Carlos A. Cuello, Mara L. Becker, Robert A. Colbert, Brian M. Feldman, Polly J. Ferguson, Harry Gewanter, Jaime Guzman, Jennifer Horonjeff, Peter A. Nigrovic, Michael J. Ombrello, Murray H. Passo, Matthew L. Stoll, C Egla Rabinovich, Rayfel Schneider, Olha Halyabar, Kimberly Hays, Amit Aakash Shah, Nancy Sullivan, Ann Marie Szymanski, Marat Turgunbaev, Amy Turner, and James Reston (Article)
2019 American College of Rheumatology/Arthritis Foundation Guideline for the Treatment of Juvenile Idiopathic Arthritis: Therapeutic Approaches for Non-Systemic Polyarthritis, Sacroiliitis, and Enthesitis., Sarah Ringold, Sheila T. Angeles-Han, Timothy Beukelman, Daniel Lovell, Carlos A. Cuello, Mara L. Becker, Robert A. Colbert, Brian M. Feldman, Polly J. Ferguson, Harry Gewanter, Jaime Guzman, Jennifer Horonjeff, Peter A. Nigrovic, Michael J. Ombrello, Murray H. Passo, Matthew L. Stoll, C Egla Rabinovich, Rayfel Schneider, Olha Halyabar, Kimberly Hays, Amit Aakash Shah, Nancy Sullivan, Ann Marie Szymanski, Marat Turgunbaev, Amy Turner, and James Reston (Article)
Emergent high fatality lung disease in systemic juvenile arthritis., Vivian E. Saper, Guangbo Chen, Gail H. Deutsch, R Paul Guillerman, Johannes Birgmeier, Karthik Jagadeesh, Scott Canna, Grant Schulert, Robin Deterding, Jianpeng Xu, Ann N. Leung, Layla Bouzoubaa, Khalid Abulaban, Kevin Baszis, Edward M. Behrens, James Birmingham, Alicia Casey, Michal Cidon, Randy Q. Cron, Aliva De, Fabrizio De Benedetti, Ian Ferguson, Martha P. Fishman, Steven I. Goodman, T Brent Graham, Alexei A. Grom, Kathleen Haines, Melissa Hazen, Lauren A. Henderson, Assunta Ho, Maria Ibarra, Christi J. Inman, Rita Jerath, Khulood Khawaja, Daniel J. Kingsbury, Marisa Klein-Gitelman, Khanh Lai, Sivia Lapidus, Clara Lin, Jenny Lin, Deborah R. Liptzin, Diana Milojevic, Joy Mombourquette, Karen Onel, Seza Ozen, Maria Perez, Kathryn Phillippi, Sampath Prahalad, Suhas Radhakrishna, Adam Reinhardt, Mona Riskalla, Natalie Rosenwasser, Johannes Roth, Rayfel Schneider, Dieneke Schonenberg-Meinema, Susan Shenoi, Judith A. Smith, Hafize Emine Sönmez, Matthew L. Stoll, Christopher Towe, Sara O. Vargas, Richard K. Vehe, Lisa R. Young, Jacqueline Yang, Tushar Desai, Raymond Balise, Ying Lu, Lu Tian, Gill Bejerano, Mark M. Davis, Purvesh Khatri, Elizabeth D. Mellins, and Childhood Arthritis and Rheumatology Research Alliance Registry Investigators (Article)
Physician practices for withdrawal of medications in inactive systemic juvenile arthritis, Childhood Arthritis and Rheumatology Research Alliance (CARRA) survey., Susan Shenoi, Kabita Nanda, Grant S. Schulert, John F. Bohnsack, Ashley M. Cooper, Bridget Edghill, Miriah C. Gillispie-Taylor, Baruch Goldberg, Olha Halyabar, Thomas G. Mason, Tova Ronis, Rayfel Schneider, Richard K. Vehe, Karen Onel, and Childhood Arthritis and Rheumatology Research Alliance Systemic Juvenile Idiopathic Arthritis Workgroup (Article)
Pediatric Uveitis, Michael Smith and Ashley M. Cooper (Podcast)
Demographic, clinical, and treatment characteristics of the juvenile primary fibromyalgia syndrome cohort enrolled in the Childhood Arthritis and Rheumatology Research Alliance Legacy Registry., Jennifer E. Weiss, Kenneth N. Schikler, Alexis D. Boneparth, Mark Connelly, and CARRA Registry Investigators (Article)
Works from 2018
Parent Responses to Child Pain During Intensive Interdisciplinary Pain Treatment and 1-Year Follow-Up., Melissa Pielech, Dustin Wallace, Megan Fitzgerald, and Cara M. Hoffart (Article)
Positive Antinuclear Antibody: What Now?, Michael Smith and Ashley M. Cooper (Podcast)
Consensus Treatment Plans for Chronic Nonbacterial Osteomyelitis Refractory to Nonsteroidal Antiinflammatory Drugs and/or With Active Spinal Lesions., Yongdong Zhao; Eveline Y. Wu; Melissa S. Oliver; Ashley M. Cooper; Matthew L. Basiaga; Sheetal S. Vora; Tzielan C. Lee; Emily Fox; Gil Amarilyo; Sara M. Stern; Jeffrey A. Dvergsten; Kathleen A. Haines; Kelly A. Rouster-Stevens; Karen B. Onel; Julie Cherian; Jonathan S. Hausmann; Paivi Miettunen; Tania Cellucci; Farzana Nuruzzaman; Angela Taneja; Karyl S. Barron; Matthew C. Hollander; Sivia K. Lapidus; Suzanne C. Li; Seza Ozen; Hermann Girschick; Ronald M. Laxer; Fatma Dedeoglu; Christian M. Hedrich; Polly J. Ferguson; and Chronic Nonbacterial Osteomyelitis/Chronic Recurrent Multifocal Osteomyelitis Study Group and the Childhood Arthritis and Rheumatology Research Alliance Scleroderma, Vasculitis, Autoinflammatory and Rare Diseases Subcommittee (Article)
Works from 2017
Evaluation of quality indicators and disease damage in childhood-onset systemic lupus erythematosus patients., Julia G. Harris, Kristyn I. Maletta, Evelyn M. Kuhn, and Judyann C. Olson (Article)
Fine-mapping the MHC locus in juvenile idiopathic arthritis (JIA) reveals genetic heterogeneity corresponding to distinct adult inflammatory arthritic diseases., A Hinks, J Bowes, J Cobb, H C. Ainsworth, M C. Marion, M E. Comeau, M Sudman, B Han, Juvenile Arthritis Consortium for Immunochip, Mara L. Becker, J F. Bohnsack, P I W de Bakker, J P. Haas, M Hazen, D J. Lovell, P A. Nigrovic, E Nordal, M Punnaro, A M. Rosenberg, M Rygg, S L. Smith, C A. Wise, V Videm, L R. Wedderburn, A Yarwood, R S M Yeung, S Prahalad, C D. Langefeld, S Raychaudhuri, S D. Thompson, and W Thomson (Article)
Validation of Patient-Reported Outcomes Measurement Information System Short Forms for Use in Childhood-Onset Systemic Lupus Erythematosus., Jordan T. Jones, Adam C. Carle, Janet Wootton, Brianna Liberio, Jiha Lee, Laura E. Schanberg, Jun Ying, Esi Morgan DeWitt, and Hermine I. Brunner (Article)
Pilot study comparing the Childhood Arthritis & Rheumatology Research Alliance (CARRA) systemic Juvenile Idiopathic Arthritis Consensus Treatment Plans., Yukiko Kimura, Sriharsha Grevich, Timothy Beukelman, Esi Morgan, Peter A. Nigrovic, Kelly Mieszkalski, T Brent Graham, Maria Ibarra, Norman Ilowite, Marisa Klein-Gitelman, Karen Onel, Sampath Prahalad, Marilynn Punaro, Sarah Ringold, Dana Toib, Heather Van Mater, Jennifer E. Weiss, Pamela F. Weiss, Laura E. Schanberg, and CARRA Registry Investigators (Article)
Works from 2016
Fibromyalgia--Toward a Definition in Children., Cara M. Hoffart and David D. Sherry (Editorial)
Monitoring change in volume of calcifications in juvenile idiopathic inflammatory myopathy: a pilot study using low dose computed tomography., Maria Ibarra, Cynthia Rigsby, Gabrielle A. Morgan, Christina L. Sammet, Chiang-Ching Huang, Dong Xu, Ira N. Targoff, and Lauren M. Pachman (Article)
Decreasing patient cost and travel time through pediatric rheumatology telemedicine visits., Elizabeth A. Kessler, Ashley K. Sherman, and Mara L. Becker (Article)
