The Children's Mercy Center for Bioethics offers the only pediatric bioethics certificate program in the world. Students will become knowledgeable in pediatric bioethical issues such as the role of ethics committees, ethics consultations, futility and moral distress, end-of-life decisions, research ethics, and much more.
Works from 2024
Developing a community-led rare disease ELSI research agenda., Courtney D. Berrios, Macy McBeth, Andrea Bradley-Ewing, Nikolaus Schuetz, Annette Campbell, Zohreh Talebizadeh, Jeremy R. Garrett, Tamara Falicov, Francisco J. Martinez, Rare Voices Advisory Group, and Emily A. Hurley (Article)
Shared decision-making in pediatric palliative care., John T. Stroh and Brian S. Carter (Article)
Works from 2023
Should the Brain Death Exam With Apnea Test Require Surrogate Informed Consent? Yes: The UDDA Revision Series., Ivor David Berkowitz and Jeremy R. Garrett (Article)
Shared in Rare: Engaging Stakeholders to Develop a Shared ELSI Research Agenda Across Rare Diseases, Courtney D. Berrios, Jeremy R. Garrett, Linda Jones, Nancy Petersen, Meghan Strenk, and Rare Voices Advisory Group
Re-membering Gun Violence., R. Dawn Hood-Patterson (Article)
Rates of Positive Suicide Screens in the Emergency Department and Outpatient Clinics at a Tertiary Care Children's Hospital., Fajar Raza, Hung-Wen Yeh, Kathy Goggin, Mark Connelly, and Shayla Sullivant (Article)
Addressing the Burdens That Newborn Screening Imposes on Underserved Communities., Meghan Strenk, Courtney D. Berrios, and Jeremy R. Garrett (Response or Comment)
Ethics Roundtable: How Much is Too Much?, Mariana F. Theodoro, Jacinda Hays, Mara DiBartolomeo, and Brian S. Carter (Article)
Antiracism: An Ethical Imperative., Ian Wolfe, Bryanna Moore, Lynn Bush, Angie Knackstedt, Sabrina Derrington, K Sarah Hoehn, Liza-Marie Johnson, Sarah Porter, and Amy Caruso Brown (Article)
Works from 2022
Psychosocial Considerations for the Child with Rare Disease: A Review with Recommendations and Calls to Action., Leslee Belzer, Margaret Wright, Emily J. Goodwin, Mehar N. Singh, and Brian S. Carter (Article)
An ethical rationale for perinatal palliative care., Brian S. Carter (Article)
Postponed Withholding Does Not Postpone Attachment., Brian S. Carter (Response or Comment)
Ethics Consultations in a Fetal Health Center., Brian S. Carter and Shika Kalevor (Article)
Does Anyone Need to Regulate Parental Access to Fetal Genetic Information?, Jeremy R. Garrett (Response or Comment)
Against Multiplying Clinical Ethics Standards without Necessity: The Case for Parsimony in Evaluating Decision-making Capacity., Jeremy R. Garrett, John C. Moskop, and J Clint Parker (Response or Comment)
Trauma-informed care and ethics consultation in the NICU., Dena Hubbard, Patricia Davis, Tiffany Willis, Fajar Raza, Brian S. Carter, and John D. Lantos (Article)
Using Everyday Ethics to Address Bias and Racism in Clinical Care., Shika Kalevor, Melissa Kurtz Uveges, and Elaine C. Meyer (Article)
Suicide Risk in Adolescents During the COVID-19 Pandemic., John D. Lantos, Hung-Wen Yeh, Fajar Raza, Mark Connelly, Kathy Goggin, and Shayla Sullivant (Article)
Bioethics for Neonatal Cardiac Care., Vanessa N. Madrigal, Dalia M. Feltman, Steven R. Leuthner, Roxanne Kirsch, Rekha Hamilton, Deborah Dokken, Jennifer Needle, Renee Boss, Efrat Lelkes, Brian S. Carter, Eduardo Macias, and Shazia Bhombal (Article)
Active or passive guidance? Decision-making in fetal health consultation., Ian D. Wolfe and Brian S. Carter (Article)
Parental request for non-resuscitation in fetal myelomeningocele repair: an analysis of the novel ethical tensions in fetal intervention., Ian D. Wolfe, Joseph B. Lillegard, and Brian S. Carter (Article)
Works from 2021
Neonatal family-centered care in a pandemic., Brian S. Carter, Tiffany Willis, and Angie Knackstedt (Article)
Principles over Propositions: Or, How to Reject Metaphysical Neutrality in Bioethics., Jeremy R. Garrett and Leslie Ann McNolty (Response or Comment)
The Loud Silence of Racism: It is Killing Us All., Bridgette Jones (Editorial)
Reimagining Bioethics Curricula: Centering Antiracism, Diversity, Equity, and Inclusion, Shika Kalevor, Marie-Laura Allirajah, Isabella Hernandez, and Phoebe Ozuah (Presentation)
A Look Back at Bioethics: William L. Meadow, 1948-2019., John Lantos (Article)
Dear President Biden: We Need a Truth and Reconciliation Commission., John Lantos (Editorial)
Don't Blame Hippocrates for Low Enrollment in Clinical Trials., John Lantos (Response or Comment)
Ethical issues in treatment of babies born at 22 weeks of gestation., John Lantos (Article)
Reply. Rapid whole-genome sequencing in critically Ill children: shifting from unease to evidence, education, and equitable implementation, John Lantos (Response or Comment)
Sources of Unease About the Use of Genome Sequencing for Diagnosing Rare Diseases in Children., John Lantos (Editorial)
Lessons From the Pandemic: How a Children’s Hospital Responded to the Challenges of COVID-19, John Lantos, Paul Kempinski, Laurie Ellison, Jennifer Watts, and Angela Myers (Presentation)
The Effect of COVID-19 on the Detection and Prevalence of Suicidality in Adolescents, John Lantos, Hung-Wen Yeh, Fajar Raza, Mark Connelly, and Shayla Sullivant (Presentation)
Balancing risks and benefits of open notes for neonatology., Lily J. Lou, Mark F. Carr, John Lantos, Jonathan M. Fanaroff, and Mark R. Mercurio (Letter to the Editor)
Death and the neonate., Bryanna Moore and John Lantos (Response or Comment)
Promoting COVID-19 Vaccination on Social Media., Fajar Raza and John Lantos (Article)
Rates of Positive Suicide Screens among the Emergency, Inpatient and Outpatient Clinics at a Tertiary Care Children’s Hospital, Fajar Raza, Hung-Wen Yeh, John Lantos, Mark Connelly, and Shayla Sullivant (Poster)
Feeling despicable is at times a two-way street., Lauren Skudalski, Brian S. Carter, Steven D. Waldman, and Reid A. Waldman (Response or Comment)
Communicating with parents of children with trisomy 13 or 18 who seek cardiac interventions., Meaghann S. Weaver, John Lantos, Kelly Hauschild, James Hammel, Nicole Birge, and Annie Janvier (Article)
Exploration and Ethical Analysis of Open-label Pediatric Vaccine Trials in a Pandemic., Ian D. Wolfe, Angira Patel, Larry K. Kociolek, Asma Fazal, Ravi Jhaveri, and John Lantos (Article)
Works from 2020
Should Pediatric Patients Be Prioritized When Rationing Life-Saving Treatments During COVID-19 Pandemic., Ryan M. Antiel, Farr A. Curlin, Govind Persad, Douglas B. White, Cathy Zhang, Aaron Glickman, Ezekiel J. Emanuel, and John Lantos (Article)
Parents Demand and Teenager Refuses Epidural Anesthesia., Ivor Berkowitz, Alyssa Burgart, Robert D. Truog, Thomas J. Mancuso, Danton Char, and John Lantos (Article)
Legal and Ethical Considerations for Requiring Consent for Apnea Testing in Brain Death Determination., Ivor Berkowitz and Jeremy R. Garrett (Article)
Parents of newborns in the NICU enrolled in genome sequencing research: hopeful, but not naïve., Courtney D. Berrios, Catherine Koertje, Janelle R. Noel-Macdonnell PhD, Sarah E. Soden, and John Lantos (Article)
Access to Transplantation for Undocumented Pediatric Patients., Olga Charnaya, Priya Verghese, Aviva Goldberg, Keren Ladin, Thalia Porteny, and John Lantos (Article)
Trust in the Medical Profession Among Adolescents in an Emergency Department., Kelstan Lynch Ellis, Kimberly A. Randell, John Lantos, and Melissa K. Miller (Article)
Pediatric Palliative Care in a Pandemic: Role Obligations, Moral Distress, and the Care You Can Give., Amanda M. Evans, Monique Jonas, and John Lantos (Article)
Seeking Normalcy as the Curve Flattens: Ethical Considerations for Pediatricians Managing Collateral Damage of Coronavirus Disease-2019., Dalia M. Feltman, Gregory P. Moore, Andrew F. Beck, Emily Siffermann, Carlo Bellieni, and John Lantos (Article)
Controversy About Withdrawal of Postresuscitation Care After Cardiac Arrest., Kelly J. Gardner, Sarah Murphy, John J. Paris, John Lantos, and Brian M. Cummings (Article)
Response to Open Peer Commentaries "Rethinking the Ethical, Legal, and Clinical Foundations of Informed Consent and Shared Decision-Making for Brain Death Determination"., Jeremy R. Garrett and Ivor Berkowitz (Response or Comment)
More than Warm Fuzzy Feelings: The Imperative of Institutional Morale in Hospital Pandemic Responses., Jeremy R. Garrett and Leslie Ann McNolty (Response or Comment)
Our Next Pandemic Ethics Challenge? Allocating "Normal" Health Care Services., Jeremy R. Garrett, Leslie Ann McNolty, Ian D. Wolfe, and John Lantos (Article)
Differing Thresholds for Overriding Parental Refusals of Life-Sustaining Treatment., Hannah Gerdes and John Lantos (Article)
"Take Out This Thing": A Teen's Decision About Removal of a Gastrostomy Tube., Hazel M Gutiérrez, Yuri Nakashima, Sabrina Derrington, and John Lantos (Article)
Should Extremely Premature Babies Get Ventilators During the COVID-19 Crisis?, Marlyse F. Haward, Annie Janvier, Gregory P. Moore, Naomi Laventhal, Jessica T. Fry, and John Lantos (Article)
Paediatric ethical issues during the COVID-19 pandemic are not just about ventilator triage., Marlyse F. Haward, Gregory P. Moore, John Lantos, and Annie Janvier (Article)
COVID-19 Trial Enrollment for Those Who Cannot Consent: Ethical Challenges Posed by a Pandemic., Samantha A. House, Catherine D. Shubkin, Tim Lahey, Jeffrey P. Brosco, and John Lantos (Article)
Medically Vulnerable Clinicians and Unnecessary Risk During the COVID-19 Pandemic., Annie Janvier and John Lantos (Editorial)
Lessons learned from the COVID-19 pandemic., Erwin J. Khoo and John Lantos (Article)
All for One and One Delivery Room Approach for All?, Autumn Kiefer, Julie Johnson Rolfes, Greg Barretto, and John Lantos (Article)
Medicaid Expansion and Childhood Cancer Care: What Effects Has It Had?, John Lantos (Editorial)
Our suffering and the suffering of our time., John Lantos (Article)
Randomized Trials are Deeply Offensive., John Lantos (Editorial)
The Belmont Report and Innovative Clinical Research, John Lantos (Article)
Yes to Life: An Opportunity for Partnership Between Medicine and Religion, John Lantos (Article)
Right to an Open Future, John Lantos and Jeremy R. Garrett (Podcast)
Work-Life Balance in the COVID Era: Sending Your Kids to School vs Remote Learning, John Lantos, Vanessa Watkins, and Jeremy R. Garrett (Podcast)
Working From Home, John Lantos, Vanessa Watkins, Jeremy R. Garrett, and Alaina N. Burns (Podcast)
School Nurses and COVID, John Lantos, Vanessa Watkins, Jeremy R. Garrett, and Shelby Rebeck (Podcast)
When a Family Seeks to Exclude Residents From Their Child's Care., Emily A Largent, Ross Newman, Christopher E Gaw, and John Lantos (Article)
Preventing Self-Harm From Repeat Foreign-Body Ingestion., Christina Low Kapalu, John Lantos, Adam Booser, Mike Thomson, and Thomas M. Attard (Article)
Ambiguous Genitalia And Disorders of Sexual Differentiation, Khawar T. Mehmood and Rebecca M. Rentea (Article)
Resuscitation policies for extremely preterm newborns: finally moving beyond gestational age., Mark R. Mercurio and Brian S. Carter (Editorial)
Healthcare organizations and high profile disagreements., Bryanna Moore and John Lantos (Article)
Parental Concerns on Short Stature: A 15-Year Follow-Up., Maria Cristina Murano, Matthew M. Feldt, and John Lantos (Article)
How sociophenomenology of the body problematises the 'problem-oriented approach' to growth hormone treatment., Maria Cristina Murano, Jenny Slatman, and Kristin Zeiler (Article)
Long-term Puberty Suppression for a Nonbinary Teenager., Ken C. Pang, Lauren Notini, Rosalind McDougall, Lynn Gillam, Julian Savulescu, Dominic Wilkinson, Beth A. Clark, Johanna Olson-Kennedy, Michelle M. Telfer, and John Lantos (Article)
Ethics of randomized trials in pediatric surgery., Rebecca M. Rentea, Tolulope A. Oyetunji MD MPH, and Shawn D. St Peter (Article)
Pediatric Cardiology Specialist's Opinions Toward the Acceptability of Comfort Care for Congenital Heart Disease., Tara M. Swanson, Angira Patel, Austin J. Baxter, Shaine A Morris, Shiraz A Maskatia, and John Lantos (Article)
Benefits and Risks of Visitor Restrictions for Hospitalized Children During the COVID Pandemic., Alice K. Virani, Henry T. Puls, Rebecca Mitsos, Holly Longstaff, Ran D. Goldman, and John Lantos (Article)
Children's Hospital ICU Resource Allocation in an Adult Pandemic., Ian D. Wolfe, Jeremy R. Garrett, Brian S. Carter, and John Lantos (Article)
Balancing Conscience: A Response to Fernandes & Ecret, Ian D. Wolfe and Maryam Guiahi (Article)
Hospital Mergers and Conscience-Based Objections - Growing Threats to Access and Quality of Care., Ian D. Wolfe and Thaddeus M. Pope (Article)
Works from 2019
Ethics and Medico-legal implications in delivery room emergencies., Jessica Brunkhorst and John Lantos (Article)
To the Editor: Accommodating, regoaling, and satisficing: life lessons from the NICU., Brian S. Carter (Letter to the Editor)
Disclosing adverse events and near misses to parents of neonates., Brian S. Carter and John Lantos (Article)
Seeking a Second Opinion on Social Media., Amy E. Caruso Brown, Joshua D. Arthur, Lauren Hall Mutrie, and John Lantos (Article)
When Specialty Care Is Unavailable to Rural Families., Jennifer E. deSante-Bertkau, Catherine D. Shubkin, William A. Nelson, Erica K. Salter, and John Lantos (Article)
Ethical issues with testing and treatment for Krabbe disease., Paul Ehmann and John Lantos (Article)
It's the Idiom, Stupid: A Plea for Formal Rhetorical Analysis in Bioethics., Jeremy R. Garrett (Response or Comment)
Rethinking the "open future" argument against predictive genetic testing of children., Jeremy R. Garrett, John D. Lantos, Leslie G. Biesecker, Janet E. Childerhose, Wendy K. Chung, Ingrid A. Holm, Barbara A. Koenig, Jean E McEwen, Benjamin S. Wilfond, Kyle Brothers, and Clinical Sequencing Exploratory Research (CSER) Consortium Pediatrics Working Group (Article)
When Adolescent and Parents Disagree on Medical Plan, Who Gets to Decide?, Kali A. Hopkins, Mary A. Ott, Zeynep Salih, Gabriel T. Bosslet, and John Lantos (Article)
Does It Matter if This Baby Is 22 or 23 Weeks?, Annie Janvier, Trisha Prentice, Jessica Wallace, Kate Robson, Paul Mann, and John Lantos (Article)
Introducing clinical ethics consultation service in Malaysia: A SWOT analysis, Erwin Jiayuan Khoo, Siew Houy Chua, Meow-Keong Thong, Bin Alwi Zilfalil, and John Lantos (Article)
Neonatologists' Attitudes About Diagnostic Whole-Genome Sequencing in the NICU., Brett Knapp, Carole Decker, and John Lantos (Article)
Infant With Trisomy 18 and Hypoplastic Left Heart Syndrome., Stephanie Kukora, Janice Firn, Naomi Laventhal, Christian Vercler, Bryanna Moore, and John Lantos (Article)
Considerations to Guide Treatment Decisions for Infants Born Weighing Less Than 400 g., John Lantos (Response or Comment)
Ethical and Psychosocial Issues in Whole Genome Sequencing (WGS) for Newborns., John Lantos (Article)
Hopes, Fears, and Deja Vu Regarding Germline Gene Editing., John Lantos (Article)
The False-negative Phenotype., John Lantos (Article)
